Is it just me, or did 2017 fly by?
Today marks 518 Days Post Kidney Transplant!! As the year comes to a close, I can’t help but reflect on how far Jonathan has come. Looking back at pictures and videos, I see how much he has changed…for the better. As far as his health goes, he is healthy. HOPE is doing wonderfully, Louie is happy, and so far, (knock on wood) he’s not had any colds or flu. Since I am working full time and rarely home, Jonathan takes care of himself. He is now in control of his life, and I am so proud of him. He makes his own appointments, refills his medications, (even though I work in a pharmacy) schedules his infusions and orders his Soliris. He makes sure that he gets his infusion every 14 days, and is very compliant. Still monitoring is fluids, it’s his way of control. He celebrated his 1 year Kidneyversary, and his 25th birthday. He traveled to California, and went on a few excursions with his friends. He fell in love, but sadly, his heart was shattered when it ended. The positive on that is the fact that he was able to feel that emotion and experience love and loss. Its what I’ve always wanted for him. There were times in his life that I didn’t think he’d ever have that, but I prayed so desperately for. The perfect person is out there for him, and it will happen when he least expects it.
His appointments are fewer, and so are his lab draws. Every 2 months. The last time he had gone that long without labs being drawn was back in 1993. His next appointment with Dr. L is in January, as we certainly miss her and his transplant team, it is so nice to not have that be the center of your life.
I asked my son, what his wishes for 2018 are, and this is what he told me.
- To go back to school. He wants to further his education and start his dream of becoming a Paleontologist.
- To become employed and work towards his future.
- To continue to mentor those with Atypical Hemolytic Uremic Syndrome (aHUS) and share his message of hope.
- And finally, to live each day the way he was intended to live it~ to the fullest.
My hope is that 2018 will be a phenomenal year for my son. He continues to inspire me, amaze me, and makes me want to be a better person. He will always be my hero.
My wish is that 2018 brings peace, prosperity, health, happiness and much love to all.
Life is too short not to Live life with a smile.
Thank you for reading.
Thank you for taking the time.
Jonathan Kolp’s Mom♥️